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Coping With Retinitis Pigmentosa

This section is a place to share stories about Coping With Retinitis Pigmentosa.

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I have Retinitis Pigmentosa


by: Zurai on Fri, Feb 01 2008

I have just been diagnosed with having retinitis pigmentosa, I am 35 years old ang I have two children and the vonis it a very big shock to me and my family. I am a lecturer in Andalas University, Padang Sumatera barat, Indonesia. I get the filling that my future has ended, can you give me any suggestion what treadment and medicines I must to do, thank you.

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Comments
  1. Fri, Mar 14 2008
    Hi, I also have RP. I was diagnosed at 11 and am now 25 years old. Unfortunately there is no cure and no true treatment at this point, although ther...Read

February 2008

  • Living with Blindness - by Margaret - (Mon, Feb 25 2008)
    My husband has R.P. and was diagnosed when he was in his early 30’s. We were ignorant of this disease and after trying to find a connection in the family came up with nothing. We had a visit from a gentleman suffering RP and he told us of his coping skills and that he was still able to read a paper albeit he held it right up to his face. [more..]
  • I have Retinitis Pigmentosa - by Zurai - (Fri, Feb 01 2008)
    I have just been diagnosed with having retinitis pigmentosa, I am 35 years old ang I have two children and the vonis it a very big shock to me and my family. [more..]
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