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Coping With Retinitis Pigmentosa

This section is a place to share stories about Coping With Retinitis Pigmentosa.

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RP
by: K. Rash on Tue, Sep 09 2008

I was recently told that I had RP, I mostly worry about my children being affected by this disease. I am 38 years old and I am not ready to live the rest of my life in black. I do have a hard time seeing at night,so I no longer drive at night. I also am petrified that I will trip and fall when I am out at night for what ever reason and I have to hold on to someone and I feel so stupid because I know that other people can see everything just fine. I hope they will find a prominent cure for this disease and be able to help all of the people affected.

September 2008

RP - by K. Rash - (Tue, Sep 09 2008)
I was recently told that I had RP, I mostly worry about my children being affected by this disease. I am 38 years old and I am not ready to live the rest of my life in black. [more..]

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